My boy has been doing his part to increase awareness of Menkes Disease.

His speech therapist used her experience with him to inform other speech professionals on this blog: Smart Speech Therapy

And that led to the blog's hostess discussing Menkes on a podcast for speech therapists at about 25 minutes in here: Teach me to Talk

And to wrap up the month, he will be the grand marshal of our hometown Holiday Parade and that will also call attention to Menkes.

Some of the press on that: Times Union, WGNA, Saratogian, Look TV, YNN TV, and News 10 ABC (not available online), The Ballston Journal.